Our governance team at Sage Bionetworks will select the appropriate governance model for your data to ensure proper data access & use restrictions, in accordance with information you have provided in your data sharing plan. Below are the standard governance model options to regulate Synapse data access and use. If you are seeking access to your own data, contact your project administrator (found under ‘Project Tools' > 'Project Sharing Settings’ on the top right of each project) or email us at nf-osi@sagebionetworks.org.
Registered Synapse Users - Users must have a Synapse account to access and use the Data.
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Users must agree to the Synapse Terms and Conditions of Use.
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Users must commit to the Synapse Pledge.
Attribution Required - Users must accept the requirement to acknowledge the data
contributors by including contributor-specified statements in future publications.
Open Access - Non-human data or data with little to no risk of re-identification. Human data is
de-identified or anonymized.
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No Data use or access limitations, other than proper attribution.
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The Provider may indicate a license name and justification for use.
Controlled Access - Sensitive data, or data with greater potential for re-identification will follow
controlled access tier governance procedures outlined below.
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Intended Data Use statement required. Required components:
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Objectives of the proposed research
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Study design
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Analysis plan
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Approved statements will be publicly available on Synapse
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Disposition Requirement: delete locally stored Data upon conclusion of research or
expiration of Data Access -
Data access expiration/renewal period: 1 year
Controlled Access for HIPAA Limited Data Sets - Additional data use and access limitations will be implemented in addition to the standard controlled access conditions listed above.
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IRB/Ethics Approval or Waiver Documentation required
Data Use Limitations:
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General Research Use only (Any types of scientific research)
Data Access Committee - Sage Bionetworks Access & Compliance Team (ACT) reviews
access requests.
